I feel like my doctors have labeled me with “MENTAL HEALTH” due to PTSD and thus dismiss my symptoms as Somatic in nature (its “in my head”. I can’t seem to get any of them to look into my pain symptoms or source any further. I get opioids and somehow they think that is sufficient (even though they don’t work for me). I’d love to find a doctor who is knowledgeable about FM. Also, I read that it’s difficult to diagnose as there is no definitive test. Is this true? How do get diagnosed? Any advice would be greatly appreciated.
Best would be a Rheumatologist (RA).
Blood Tests are available to diagnose Fibro,they are genetic profiling test, very expensive, most insurance companies balk at paying for them. Usually doctor will look at 9 trigger points on your body. Test is basically to induce pain, blood tests can be done, mostly as a rule out results. RA titers, immunoglobulins, Sjorgen antibodies, see rate, and a few others. If all tests are positive, and you have 6 of 9 trigger points, they will diagnose fibromyalgia.
Good luck, hang in there.
I agree with Tonyaon Dr to see I ended up working with voc rehab and got a Dr to refer me to Mayo clinic in Rochester. They did a bunch of tests and at the end of all testing they diagnosed me with Fibro.( I was diagnosed by a Dr in my home town but no Drs believed in the disorder) I can’t find a Dr that will treat Fibro.
Where are you located. What’s your need to make them do and if they won’t go to the hospital nav it done you need to get an mri, that will substantiate your claim. I go through the same exact thing I find they found a pain management doctor who actually listened and believed my pain.
Yup pain management is A great way to go. In route to my PMC as we type, no I am not driving. 😁😜😛
I see so many specialists but rheumatology is where I was leaning.
Sounds like you have a great vocational rehab. I just started PT today and my guy sounded like he understood my pain just from our first appt. I’ve been seeing pain specialists and a team of spine/ ortho ppl for over a year that haven’t had half the insight of my PT.
Unfortunately, my pain specialist have been no help at all. They just want me to come in and get injections which have not helped thus far. I think they are just interested in money. I’ve had MRI done and while there are changes in my condition (most recently saw edema in my right hip) they just keep referring me around to different specialists. It’s exhausting.
Change pain specialist it took me three different ones to find someone who could help. Now I have a really awesome doctor.
I was diagnosed by a rheumatologist some years ago, and I have been told that if my PCP was unable to effectively treat me, I’d have to see a rheumatologist.
Unfortualy pain management here does not treat Fibro. Get hope you find one in your area.
When my injections didn’t work my pain management Drs sent me to a surgeon for my lower back and they are all missing the fact I have neck and upper to mid back pain as well…
Try going to a rheumatologist or similar, since they’re more likely to focus on your physicality.