Weird Migraines after Concussion

Hello… I’ve suffered from migraines for a long time! The first one I remember, I was 4 years old and I had no idea what was happening. But I had some of the more common symptoms like pain behind my eye, sensitivity to light, sounds, smells, nausea, vomiting and others that I just needed to stay in a dark room for 2 days until they went away. Over the years I’ve had them a few times a year then gradually a few times a month depending on all I was doing. I got a concussion 4 years ago and it completely changed my symptoms to the point that I thought my migraines were gone. It’s like they all became physical for the most part. I still get nauseous sometimes and the pain behind my eye. But I get muscles weakness to the point that I collapse on the ground a lot (approximately 2 times a week for the entire day), ringing in my ears, burning sensations in my head, confusion, hard time talking, typing reading and understanding or making sentences and I’ll forget what I’m doing and it can be important like, I’m making food on the stove or I need to use the bathroom or eat… has anyone else experienced these shift in symptoms? I spoke with a specialist and he advised me that it is very common but I really have a hard time finding information on this… I got both of my daiths in my ears pierced this year so I don’t really feel the head pain as much. the burning would be so intense that I used to need to fill a bucket with ice and cold water and put my head inside of it for 5 minutes. That doesn’t happen as often… sorry for the long post I’m just hoping someone else will know what I’m talking about

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Hi my name is Susan and my husband has Seizures, any where from starring Seizures to full blow Grandmal Seizures. This happened when her hard a forklift accident at work. Now he has cluster headaches, seizures, Fibromyalgia and the list goes on. To make this a little shorter, when his Fibromyalgia acts up, he is down for the count, for any where from 1 day to a week sometimes. He has all of your symptoms.
You might have Fibromyalgia, have your Doctor check for this. Most Autoimmune Diseases go hand and hand with each other.
The doctor told us his Arthritis, his Fibromyalgia, his Lichen Plantus, Restless leg Syndrome, and his Cluster Headaches were all Autoimmune disorders.
Doesn’t hurt to be checked out for it. I hope this helps!

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Thank you very much for responding! I guess I could get checked for it and mention it to my Doctor. I have friends with fibromyalgia and I guess I hadn’t thought to ask them about their specific symptoms. I just remember a lot of them saying that it would hurt to touch them and their skin would feel like pins and needles or something which I haven’t experienced. I know sometimes, though, when my head pain is really severe, I’m fully expecting a seizure at any moment due to how much pain I’m experiencing in my head and it feels like my brain is going to shut down. Thanks again

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I gwt there and can’t get out of bed the doctor give me medication call mpm 350mg as need and it happens

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I have lichen plantus that seems to get worse every year. So this can cause more headaches and migraines?

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I think it can, because my husband gets more cluster headaches when his Lichen Plantus is flared up.
We’ve had some good success in finding a combination of meds. to keep it under control, took about 3 years to find the right combination. As long as he uses it when he is supposed to, he does pretty good.

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Oh thank you for replying! I’m so sorry you get that too 😕

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I know that feeling, I have had Migraines since I was about 25 years old and I’m 65 now. I have different types of Migraines, I have Optical Migraines, Cluster, etc. some fill like I have a vice grip squeezing my head, some feel like my head is going to explode, sometimes it starts in my neck and works it’s way up to my entire head. Sometimes it makes me throw up, sometimes it feels like someone hit me with a sludge hammer, etc. etc.

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Sounds like hemiplegic migraines. Get checked out though because any time your migraines change esp after a head injury you need to be checked.

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I can’t help. I will pray for you.

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Hmmm thank you for telling me about how your migraines impact you! I guess it could be different types of migraines for me as well.

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Thank you for commenting this!!! I read something about migraines causing partial stroke like symptoms and I wasn’t able to find it again. I will say I don’t even realize I have a migraine some days until I try to get out of bed and once I attempt to stand I collapse due to my leg muscles giving out. It’s not painful but very inconvenient. I will sometimes need to crawl or scoot on the floor just to make it from my bed to the bathroom or down stairs to eat. It’s very challenging too because i can’t just expect to wake up like this… I have no idea when it’s coming and no idea when it’ll subside!! Thanks again I’ll get it checked out

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The doctor gave this and why doesn’t he want you out of bed for .

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Please be careful.

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Thanks I’ll try! It happened partially today when I was out and thankfully it was the side I don’t use to drive. It can be embarrassing when I get like this. I was thinking of getting one of those walkers with a seat for when it happens or I feel it coming

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Hi my name is mike. I am 62 and been having that same problem . i get up get to bathroom and forget why i was in there.
Kitchen is worce. I am hungry but by the time i get there i have no clue why i went there…

Yikes! That’s not cool. Thanks for replying. I’m 28 and my doctors let me know that what I experience isn’t normal but then again there is really no cure for migraines so we’ll have to wait for when there is one I guess.

Mike, you should see a neurologist as soon as you can. Your symptoms sound like the early stage of dementia (not neccesarily Alzheimer’s though) with short term memory loss (my mother in law has this) but you’ll need an expert to properly diagnose you to rule out other reasons you’re having this kind of trouble.