Hi, I’m 27 years old, and have had this pain for over a decade. I was finally diagnosed 2 years ago, and applied for SSI. I’m heading to my appeal this month and I must say I am nervous. My doctors have not been taking my pain seriously, and after trying things that didn’t work for nearly two years, my rheumatologist put me back on Aleve. I had taken Aleve for two years, and ibuprofen for two years before that, all before I started seeing the rhuematologist. So I’ve requested a new dr which I’ll be seeing Monday (tomorrow). I’m hoping he’ll take me seriously and at least scan my joints to see how bad the damage is, and then hopefully have ideas for other treatment options. Maybe his new records will help with my SSI appeal. I just want so relief from the constant overwhelming pain. I’ve been unable to work from it since 2012, I can’t stand the thought that people think I’m faking it because I have visible joint swelling and I’m actually not lazy, I’m a very hard worker, and a very driven person, just unable to do 90% of what I used to do. I can’t even enjoy a walk around the park on a paved trail anymore! And I can’t keep struggling to merely survive with no income either.
I hope you have some other comfort from your joints. Maybe this new Dr will see what you are dealing with. Please let us know what you find out. 🙏❤
Arthritis is a real deal. It damages joints. And psocratic arthritis causes skin leasons, itching, and nail problems. It is no laughing matter.
The skin inflamation alone can cause you to miss work. It can help with your disability if the leasons caused you to miss 3 months of work. If not then the psoriasis can not be used.
Or if the leason caues a major issue with a joint it can be a dissability.
If the arthritis caues you to need surgery on a joint that is a qualification. Or it it affects your spine making bending and stooping difficult that will qualify you.
If you have a deformaty, infected or inflamed perifeal joint it will qualify you.
In case you don’t know a perfeal joint is the joints of your hands and feet.
If the palms of your hand are involved and you have trouble pushing, pulling, or grasping, writting, typing, or lifting this affects your ability to work.
Arthritis that affects your feet, ankles, hips, or groin area, may give you limitations on activities that requires walking , kneeling, or remaining in one position for long periods of time. This will qualiy you.
They also will look at your age and how long these things can keep you from being able to preform any job you have been trained to do. They will look at what kind of job you had.
With all those things they will determine if you can preform that job for a sustainable amount of time. If not you will qualify.
I hope this is helpful to you.
Stay well and gentle hugs to you. I will pray for you because this is one of the hardest disabilities to prove. Especially if you are young.
Sorry that you are not being believed. I have had MS Since I was 22. But was not diagnosed until I was 52. For years I thought I was crazy because I had symptoms last 6 weeks and suddenly clear up, it was frustrating to be told I was just overstressed. So I hear yours. You have a VERY SERIOUS disease and you should be treated with respect. I am glad you are getting a new doctor and if that person doesn’t listen keep searching. 🙏🙏🙏
for strength and pain relief. Ask about CBD cream. I use it for severe degenerative arthritis and was astounded at the relief I got.
Haley you might want check about the use of CBD oil for many issues that you are dealing with a few friends of mine say they good relief from them .it’s just a thought you might to check about
Sincerely Patrick ❤💚May God Bless
Hang in there! It may take up to three appeals to get your SSDI. However, I encourage you to NOT take “Go to hell” for an answer. Keep your case moving forward, even if that means getting a lawyer! As for your pain, I encourage you to keep looking for a doctor that will do something about your constant pain.
When you go to SSI tell them that you are depressed all the time, it is effecting your quality of life. They will send you to a Psychologist and tell you are depressed but you would like to be still working if you weren’t in so much pain. They will approve your SSI. That’s how my husband got it. I hope this helps you.
Good luck and don’t give up it took my brother a very l.p. g time to get his disability and he had pain but no one could find what was causing it. Kept being denied SSDI. Now he’s got something else and and at least he can take care of himself for the most part I help out with a couple of bills, but that’s what family’s for and I can name when he’s been there for me. So my friend Just hang in there don’t give up keep fighting and keep your spirits up it will happen it can be a very long road but nothing worth having is ever easy. And if you live in a MM state you might want to think about trying that for pain it helps some people.
Hey, I was very concerned since my mother had carpol tunnel surgery in her early 30s. I too for years I’m 21 now have had hand cramps and joint aches especially when the weather gets colder I do alot with my hands and cant imagine myself loosing muscle in my wrist. A doctor told me to keep a log some years back when I was 16 and said I may need to go see a specialist because I showed her that my wrist would pop and my elbow would too and have some discomfort. Also I know this sounds like I’m complaining too much but seriously my left foot has had 3 sprains and this last one happened while I was at work this last March or April it was and I’ve been having swelling after work in that foot for months on and the doctor gave me meloxicam 2 refills I’m still in the first bottle she gave me because I’m afraid to take it it damages your liver and I already have stomach issues. It feels like at my age no doctor will take me seriously. I dont know if I told the doctor that I’m still having issues with my foot or not will help and I also have developed hives as a allergic response to my environment I’ve seen a allergy specialist and yea hes gave me allegra and motulekast to take for it it somewhat works. I just not sure what to do any suggestions?
You’re lawyer can get you a doctor he’s working with them to see if you have a chance for SSID get one ASAP
It’s good 👍 I’m 63 works well for me
Will br praying for you
SSI will deny you benefits at least twice ( for me). Wound up hiring an attorney to filed third application and went through. He charges 1/3 of my back pay ( they pay when approved back to 1st application date) There would have been no charge if he lost. Seems if you try and apply on your own, they deny, hoping you will give up. Best of luck.
Please please do not ever close your SSDI case. ALWAYS appeal it. By appealing it it keeps it active and if and when you are granted they have to go back X amount of time for payback. I am on my third denial, second appeal.
They deny even if you have an Attorney. I got an Attorney right from the start of my second try. I have been denied 2 times and have my second appeal in process. My lawyer has requested a face to face hearing verses the internet one. He says it is better that way.
I wound up on SSDI 15+ years ago. I remember having to fill out forms and mail them in. Not sure what or how attorney did you get it through, was happy to be approved. They did challenge me for a few years, had to go to different Dr.s for evaluation. I don’t know if they still do that or
not. Used to have to go into local SSI office to meet with reps for a while too. It stopped one day as quick as it started. The internet approach may save you from all those hoops. Dealing with Govt bureaucracy can be a pain.
When it comes to the SSA, don’t take "Go to hell’ for an answer. Always appeal your case, ro keep it active. Get a lawyer if you feel to overwhelmed by the paperwork involved. I believe it is worth it to pay a portion of the back pay, for the long-term benefits.
I have a lawyer through Parmele, and they specialize exclusively in disability law.
I’m going for SSI, because I don’t have enough work credits to qualify for SSDI. I had to quit working back in 2012 because of my pain. They will only go back two years though, I understand that.
I saw my new rheumatologist last week, and was very happy with how thorough he was. He is going to start me on Humira, and let me keep taking the otezla until we see how the Humira will work for me to decrease the likely hood of a flare from stopping the otezla before the Humira has a chance to work. I’m already at the highest dose of Otezla and have already tried Methotrexate. He diagnosed me with tendonitis and read me my lab results. My inflamation markers are over double what is considered normal, and he specifically stated that my inflamation is not controlled. He kept apologizing to me, and saying he will do his best to help me because someone as young as me should not be living in this much pain for so long. I’ve even struggled with depression since puberty which is about when I first started showing symptoms of this which at the time where unexplained. People kept telling me I had lupus because of my butterfly rash, and that was very hard to cope with for years until I was able to get my diagnosis. This new rheumatologist is a bit younger, and has more training than my old rheumatologist, so I’m very hopeful to see some improvements under his care.
My conditions keep me in severe and chronic pain at all times. I maybe have 3 good days in a year and those days my pain is still at a 4 and 5. The rest of the time my pain averages a 7, but a bad day is easily a 9 and 10. It keeps me from funtioning, myself, my family, and my household suffer. I can’t remember a time when I wasn’t in pain. I need to get approved for disability for more than just the money, though that will be miraculously life changing, but I also need it so I can qualify for the resources I need, like at home care during my worst days, and assistive care, and assistive devices, and I don’t even know what else could be afforded me. I just need help, finacially, and physically so bad.
Will be praying for you to get approved and your pain gets better. I have constant pain in in my neck due to accident and arthritis.
I got SSD first time.