Hi my name is Cynthia and I have Multiple Sclerosis. It is Progressing and I’m in constant pain.
Hello, I am a fighter as well and I also have M.S. pain is life for me. My back and knees are also very messed up It all started for me with an injury from sports & jobs. Then I woke up blind, the eye Dr said check for brain diseases.
It’s nice to meet you. I have constant pain and it never goes away. My eyes are the only thing that I can say are functioning properly. My balance is off, I walk with a walker hands cramp up and I’m always tired. Can’t go outside and enjoy the weather for to the 🌞 is not a MS patient’s friend. My current Nuroligist is horrible and I’m going to see a specialist this month.
Hi I have Secondary Progressive MS. Nice to meet you all. My balance is off. I broke bones in mymy left leg in December. I brone the same leg again last month. I now have a plate and screws in the tibia and I broke the femer in my right leg at the same time. I have other problems that cause a lot of pain.
Sorry you’re in so much pain now I can definitely relate to it. It hurts me to move
I now have muscle spasms in both of my thighs. It is so painful it makes me yell out in pain. MS is terrible and people don’t talk about it
Hi guys, I got diagnosed this past Christmas Eve with MS my neurologist said he hasn’t known me long enough to know which type of MS I have but he’s pretty sure that’s it relaxing and remission ? I don’t know if I’m saying that right my husband always corrects me? forgive me this is all new to me this all happened after I took a self-defense class and I injured my shoulder and I thought I tore my rotator cuff and it wound up they found out that I had spinal cervical stenosis but the neurosurgeon wouldn’t do neck surgery he wanted me to do pain management found lesions in my neck and said if you have lesions in your neck I bet you have lesions in your brain and that’s when they found my MS since then I’ve hurt my foot hiking so I tore my plantar fasciitis ( hiking) it seems like every time I go to do something good for myself exercise wise I hurt myself 🙄 I am hair dresser and always on My feet , all day the one thing that my primary care doctor has helped me with in my MS doctor is very thankful for because my primary care doctor can prescribe me the medical marijuana is just that it has helped me through the pain I don’t know if you guys have tried that but it has helped me a great deal I take the one that’s called balance and it has equal amounts of THC and CBD and it helps with your nerve pain it’s for people that are MS it helps people with neurological and nerve pain. And they say we got to keep moving. I’m new at this you guys probably had this a lot longer than I have so I’m just a newbie. But I am feeling all this pain as well cuz when I did start to wean myself off the medical marijuana I felt my pain come back and I said to my doctor buying my weaning myself off this medical marijuana he goes yeah I don’t know why you don’t have to come off of it that’s what it’s there for you have a message not going away don’t put don’t put yourself through pain. I was afraid it was going to camouflage the progression of my Ms and he said no I can see if your Ms is getting worse you don’t need to worry about it I’ll let you know.so if you guys haven’t tried it reach out to your doctors I have a great neurologist that I absolutely love make sure you love your doctor’s butt is so important!!!
Never lets me go back to correct relapsing
Having reached my 16 year milestone with MS this past May, I’ve learned that this is such a personal disease with no two cases alike. What works for one person may not work for another but allow me to share my experience with neurological pain and muscle spasms.
For pain, I take Cymbalta, which is an anti-depressant that is used off-label for neurological pain. My pain is mainly in my feet but this med has definitely helped me.
I have tight hamstrings, which are most bothersome at bedtime. For it I take Baclofen, a muscle relaxant. I also take Clonazepam that helps with spacticity and sleep. My specialist also recommended stretching. With that I’m a bit lazy lol but I must admit that it does help. I also use a TENS unit for relief when my muscles just can’t seem to relax.
As I alluded to above, this treatment regime works for me. It’s not perfect but has made a difference.
It’s natural to have what I call pity party days. I no longer feel guilty on my off days. I’m lucky to have an understanding wife and son who know when I need alone time.
Well it’s late here in Nova Scotia, Canada so I’m going to bid a good night to all. Take care of yourselves. Never hesitate to reach out for support here.
One medication that I forgot to mention is Fampyra. It is a medication specifically for people with MS to help improve their walking speed and has helped me with balance also.
Thank you Charlie 💙
Thank you for that info. I will definitely speak with my New Nuroligist about changing my meds since they don’t seem to be working .
Me, too. I’m a fighter and will remain do, regardless of this diagnosis. One year ago, I was diagnosed just weeks befoe my son turned 18 and a few more weeks before my 50th birthday. I kept going as much as I could. I took Copaxone in the hope that the MS wouldn’t progress; it did, though. I’ll be starting Ocrevus in a few weeks.
Yes we all have to keep fighting… My MS is also progressing but I believe there are some other things going on…
Me too… 'lots of stuff to deal with. :-/
Hi, guys. I’m really happy today and wanted to share. On the first visit with my new Neurologist who specializes in MS, he ordered some visits with other specialists to address a couple of other issues that are exacerbated by MS. For one, I’d been trying to get arthritis in my knee taken care of for years. Today I finally got a shot that I can get every 3 months if needed and physical therapy was ordered to improve my strength. My knee feels better than it has for years. Yay! (I hope it lasts…)
I start Ocrevus in a couple of weeks. Wish me luck, please.
I see my new Nuroligist next week. I have so much going on and pray he can help. I’m going to look into checking on getting new meds and I’ve seen a lot of people saying that they’re starting new Meds I have to do that as well I’m so happy that everything is going good for you
Hey, Cynthia. For me, seeing the new Neurologist is a blessing. I was running out of hope…
I hope it goes very well for you, too. Let us know.
Hello me warrior I have had rrms seance 2011 I am in pain and in lots of meds to control the pain with only dulls the pain so I understand .
I’ll keep you guys posted. Appointment is Wednesday…
I’ll keep you in my prayers. The pain can be unbearable. Keep fighting…