Chronic pain

Who else is worried about lawmakers dabbling in practicing medicine? ie deciding what meds we should have, and how much.

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I am also concerned that it is getting harder to get the pain medication I need. I have never missused the drugs I take, but life without them due to spinal stenosis, fibromyalgia, degenerative disc disease, osteoarthritis and migraines and. Other nerve pains is not liveable. I cant imagine how we will cope if they take our drugs away. I try to keep them to the minimum because even the copays are expensive. It is all in GOD s hands.

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I too am concerned with the changes being implemented to limit access to narcotic medications and to silence the pain specialist physicians who are actively treating chronic pain patients. While I understand the concern over the drug over dose deaths the limiting of narcotic medication to chronic pain patients, who are compliant with their pain doctors, who are drug tested monthly to ensure their blood levels of narcotic medication matches what they are being prescribed and to ensure that their blood shows no other not prescribed and or illegal medications, who never abuse their narcotic medication, never request early refills, do not require increased medications and who follow their doctor’s rules and guidelines, will; not alter the over dose deaths in any way. These compliant patients do not sell or share their medications, they take them as prescribed and they value their prescriptions like gold because they know without them their quality of life dissolves. Most of us chronic pain patients experienced years of intractable pain while our doctors had us experience many different types of physical therapy and other forms of therapy such as Açu-pressure, Açu-puncture, Hypnosis, Self-Hypnosis, Tens Unit, Moist-Heat, Ultra Sound Therapy, Infrared Heat Therapy, Talk Therapy or CBT, Exercise, Yoga, Stretching Exercises, Walking, NSAID medications before turning to narcotic medications due to chronic intractable pain that was not well controlled with any of these other therapies. When the narcotic medications were started, it took a very long time, over 1 year before my doctor was able to find the correct medications at the correct dosages that sufficiently controlled my pain. It has been many years since my chronic pain was finally under good pain control and during these years, I requested only 1 increase of medication and that was due to a severe auto accident which knocked me out and caused a serious concussion ad left with me with diagnosed cognitive deficits in addition to the whiplash and two additional bulging discs in my back. This accident happened in Feb of 2015. Since that date I have not requested nor needed any increase in my narcotic medications. Now I am faced with the new 2019 formulary restrictions which threaten to reduce my narcotic medications by more than half. I am starting my appeal procedures to try to secure an exception for my various narcotic medications, howe3ver my pain doctor has advised me that every exception she has appealed during the last several months has been denied. I am very concerned that professionals not educated in the treatment of chronic pain are making decisions regarding narcotic medications without any input from the treating and prescribing physician and without any regard for the medical diagnosis of the patient. These dramatic medication reductions are destroying patients and their families. While opioid withdrawal is not life threatening for most drug addicts, it is life threatening for a majority of chronic pain patients due to the various other medical conditions present in most chronic pain patients like heart disease and or blood pressure, to name a few. Causing their intractable chronic pain to suddenly fare up due to physical withdrawal from the physical dependence of the narcotic medications, will cause these patients quality of life to literally disappear. Most of these patients will no longer be able to care for themselves or their families, they will lose the ability to drive, to function at any level and most of them will end up bed ridden due to excruciating pain and the anxiety that accompanies the pain since there is no relief in sight. These patients are physically dependent on their narcotic medications however they are not drug addicts. What happened to the doctors oath to First Do no HARM? To suddenly reduce the quantity of narcotic medications that have been prescribed by a treating chronic pain specialist is unprofessional and very damaging to the patient and their family not to mention that to continue to ignore the treating physician’s diagnosis and or prescribed treatment is equally unprofessional. Surely there must be some middle ground that will allow the authorities to reduce the number of drug over doses and reduce the amount of illegal drugs on our streets without penalizing chronic pain patients that are in good standing with their treating pain specialists. I am in favor of tough drug laws and limiting the dose and or quantity of narcotics prescribed however there must be an allowable avenue for exceptions to be made - guidelines that allow for long standing chronic pain patients to continue receiving their prescribed narcotic medications under the guidance of their prescribing pain doctor. We cannot allow for so many suffering chronic pain patients to be further injured by these new restrictions - In 2012 I was granted a 10 year approval for my narcotic medications which was given to me after years of quarterly medical reports and requests for narcotic medication. That approval would have expired on 2022 however when CVS purchased Silver Script this year (2018) CVS has cancelled all pre-approvals and demanded that new annual pre-approval requests be submitted. My pre-approval was approved by Medicare, Silver Script and the physicians behind NJ Prescription Assistance for the Aged and Disabled and they all agreed to grant me this pre-approval until 2022 now in 2018 CVS cancels all of the filed pre-authorizations and demand new ones only along with this demand they also have created the new 2019 formulary with greatly reduced quantity limits for all narcotic medications. I suggest everyone write to all our your representatives in your state and federal government to ask for help in keeping you narcotic medications available. Thank you

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I worry about any time the Govt tries to control anything. I receive so many guesses as to what is wrong with me I don’t want them stopping what I can get.

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I totally agree with you. Unfortunately, seniors are fighting what Obamacare has put in place to limit care for everyone over 70 and anyone very ill. It is all in the plam. It must be repealed and replaced. I am fighting for every pill i take. We nust all have to stay solidly together.

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Lawmakers need to be there right now because the prior government has damaged our medical rights. It is a scary thing though. A good law can become a bad one in the wrong hands. We just need to be very aware of what is going on legally.

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I am very worried, having fibromyalgia and my meds aren’t working like they use to. So if they start saying we can’t have this meds or that meds, they are not the doctor to say this.

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What drugs are you taking for your fibromyalgia? I have found the only one that works for me is Savella. Have tried all of the others.

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I am concerned because I suffer from Psoriatic Arthritis and have been off my meds for about 4 years due to financial reasons. My symptoms have recently gotten worse in the last 6 months or so. My right hand joints have become very swollen and have basically no muscle strength in my hand and wrist whatsoever. Also have developed severe swelling in my legs and feet so much so that I was unable to wear my shoes for the last couple months was only able to wear a pair of adjustable slippers. Just now was able to purchase a pair of Men’s sneakers in size 11 Extra Wide Width and was thankfully able to get my feet into them which is great because of fall and winter coming. I normally wear a size 9 to 10 Wide Width Women’s Size. So thankful to the mail order catalog for carrying these shoes. I am finally able to get back to the doctor’s on Tuesday October 16th and am hoping for some pain relief but don’t want to be doped up on mind numbing pain pills, any suggestions? I am also signed up for a Pain Management Workshop at my local Senior Center to get some tips on dealing with this constant pain everyday. I am hoping to touch base with some of you for advice, suggestions or any questions you may have. Thanks for any and all support.

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As a retired nurse, and psoriatic arthritis sufferer I would suggest warm moist heat. It increases blood circulation to the area that you apply it. Just be careful not to deplete the natural oils of your skin by using it too much. There are many prescription drugs for this condition, the problem is that they are expensive and have some problematic adverse reactions, such as liver problems. If you can tolerate the meds but have problems affording them, every drug manufacturer has programs to help with the cost. Just look up the manufacturer on the web and there should be a link to these programs. I wish you luck.☺

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Thank you so much for the input. I have tried soaking my feet and hand in warm Epsom salt soak.It helped slightly, will try to do it more often. I had my doctor’s appointment. today and she is re-referring me to my rheumatoid doctor for treatment. I used to be on Methotrexate and Humira Injection Pen. I am aware of the help from pharmaceutical companies as I have used that before will use that again once I have a current prescription from the rheumatoid doctor. Thanks though for the reminder to do so as I have so many bits of information flying around in my head.

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It is really hard to deal with chronic pain. I find that playing computer games like hidden object games takes my mind off of the pain. I take several pain meds but i have a wonderful neurologist who is trying to lower the amount. He has at least lessened the ones I take during the day.

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Hi everyone! We now have a topic specific to Fibromyalgia, which you can find in the link below:

Please feel free to stop by and share your experiences about fibromyalgia, ask questions, and welcome our newest member @Sgabriel to the Community. :)

Have a wonderful day!

—Ivy
Community Manager

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Thank you for such an articulate and informative post. I suffer from chronic pain and several long standing illnesses. I have been on high dose narcotics following surgeries, but always decrease these drugs as soon as possible. Most of my surgeries are spinal fusions. I have an excellent brain and spine surgeon. He is very considerate of my pain following surgeries but gets me to the lowest pain relievers as soon as possible. Then, my primary care physician takes over my pain management. What you’ve said concerns me very much. I am unaware of any changes coming concerning our narcotic pain relieving drugs. I plan on talking with my doctor during my very next visit. Thank you for this information.

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Doctors word should be sufficient but is not always.

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I to am worried about this. I was taken off my pain meds for this reason. Lyrica is barely helping with my fibro. The pain was much more tolerable when I was on pain meds.

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I have a spinal cord injury at T4. I literally couldn’t go to work or function if I didn’t have pain medication. My doctor did cut my amount of pills from 120 to 75. At my last visit he increased them back to 90 as a compromise. It’s not that I’m taking more but I was down to my last pill at the appointment. As I informed him that if he was not available then I would be in serious trouble. It only takes one missed dose for the pain to start taking effect a few hours later. I’m extremely concerned that at some point a bureaucrat will be able to cut my medication. I would have no quality of life whatsoever.

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I myself is concerned, due to some side effects of medicine that is prescribed. When I have a side effect that doesn’t agree; I am prescribed something different and told to stop other. Feel like a test dummy sometimes. When actually it’s seems like none of medicine is working, and I’m just bearing the pain to keep going. All the meds I’m taking is keeping pharmacy busy. Ijs

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Ivy,
I also have fibromyalgia for over 18 years. I have found exercise in a warm pool works well. Start slow and work up slowly. I got to the point that I could ride a bike and hike and dance without too much pain. I also worked full time as a physical therapy assistant until becoming disabled in 2017 due to spinal stenosis and balance issues. I take a muscle relaxer at night. Occasionally one during the day. I take tramadol only when my pain levels get to a 6 or above and have had the same dose for 10 years. I was actually able to decrease the amount I take with exercise and gentle stretching. Yoga is good.

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Hi all. I’m 60 and work part time. I can’t believe how my body has changed in the last year. When you say exercise in a warm pool. How warm are you meaning and where would I be able to use one.

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