Hi! I’ve not posted really so here it is.
I have eye issues - symptoms that are grouped under the umbrella of AZOOR - Acute Zonal Occult Outer Retinopathy. I have an epiretinal membrane in the back of my left eye that continues to grow. Big blind spots in my visual field. A bunch of other things with my eyes. The most recent is binocular diplopia - double vision that goes away if you cover one eye. It’s a very typical presenting symptom of Myasthenia Gravis. I have other symptoms of it too, but no diagnosis yet. I see very good doctors at Duke, but even there sometimes they have no idea. I am having a single fiber EMG next week, it’s supposed to be the gold standard of MG testing. But even if it’s negative, I could be seronegative. I have other issues too - Bipolar II, Severe Anxiety, Complex PTSD, Fibromyalgia, Chronic Fatigue, and I fall a lot but no one can tell me why - I lose my balance, but I’m not dizzy.
I didn’t see anywhere else to make my first post so I hope here is ok. I suppose I should say I’m a 54 year old lady, although I think it’s just a number.