I had severe chronic migraines for 50 years. Last July I started taking Aimovig, a once a month self-injection. I started with 70 mg. but after about 4 months my Mayo neurologist upped it to 149mg. My results have been miraculous. I have no more headaches. None. I can eat and drink anything. I have my life back. Aimovig was the first injection on the market. I have no experience with others.
I meant 140 mg.
I am glad you finally have relief. This is one of the options my Neurologist is looking at for me … I have had a non-stop migraine for over 28 months. Currently, I am on Memantine, but I am still waking up every day with the migraine which worsens as the day goes on. I have pretty much lost my life … when I do go out it is with two pairs of sunglasses and earplugs, and that is for appointments. I lost my job because I cannot look at a computer screens and I am a program analyst. This app is on my phone which is the only device I can turn down low enough that I can still see things. I can only be on here for short periods of time, though, even with the dim screen. It is wearing on my mental state and getting really old!!!
I am so sorry to hear that. I don’t know anything about your neurologist, but maybe you should get a second opinion. Your situation sounds unusual to me. I can’t even begin to imagine your life. I think that the longest headache I ever had was about 10 days. They used an infusion to stop it. I’m fortunate to go to Mayo Clinic. Good luck.
Thank you. Actually this is the third Neurologist I have been to - the second one was from Cleveland Clinic which has the same reputation as Mayo Clinic, but I live an hour and a half from Cleveland so the daily treatments they wanted to do was not possible. I have to say this last Neuroligist I am seeing is the first one who has actually listened to me, and is realizing I really cannot work like this so is really trying to help.
That’s good. I really hope you get help. Try Aimovig. It has been wonderful for me.
I’m sorry Chicky. That sucks and you are strong to keep fighting. Does the pain ever decreased?
Go see a doctor and get a shot
Go see a doctor it helps
I’ll try it thank you
I agree this has been a life changer. I’m not on shots right now bc my copay is so high I can’t afford it, but I’m looking at getting help with the expense.
Neurologist is looking at this for me. Waiting on authorization from Medicaid.
It lets up to just a band of pain (like I have a too tight hat on) at times, but I’ve never had a day without headache pain since before January 31st, 2017!
Thanks for the feedback im looking into. I have been on topamax for about 20 yrs. Had migraines since 16 im 60yrs.
Want off topamax started back on botox for migraines did them yrs ago. Need a maintenance…
Keep feeling good
They have a coupon that takes care of most of the copay unless you’re on government insurance like Medicare or military insurance. Check out their website.
I know that topamax can cause problems for a lot of people but there are a few people it does work for. I too also tried the shots but I swear it’s like a lot of things start not working as good as we are told they would when 1. You have some of it already in your system. 2. Do U have any idea what that stuff is made of. It’s like REALLY putting a NASTY poison in your system. Find other avenues to go down. Ask people, research some meds and start trying those. A med that I’ve tried and I can say it took a little edge off of my pain was embrace.
I’ve been using it for months but doesn’t seem to work either. I’ve been on everything, but no relief.
Ty looked into Zembrace its a not a preventive med. Which is what I need. Which is what Topamax is . i just dont like taking pills every night, & when traveling needing to take my bottles. Thats why I was looking to the IJ or stimulation to once a month or few times a months. I have Dr looking to switch to the Zembrace cause it is a diff form of Sumatriplain than straight Imitrax. I may need when I have onset. Thank you .
I’ve been able to cut back or eliminate almost all of my migraine medications, including Topamax, since I started taking Aimovig last summer. My Mayo neurologist was a part of the team that developed Aimovig. It was developed after they found a new way to look at how migraines develop, and therefore how to treat them. In terms of medications being “poison,” 50+ years of migraines did a lot of damage to me psychologically, physically, and socially. I couldn’t eat a regular diet because most foods caused migraines, along with the typical causes. I am
now 99% migraine free. I would say that is worth it. Plus there were extensive trials on the medication. The reasoning that medications are all meds are poisonous reminds me of the Anti-Vaxers who would rather expose their children to a deadly disease than vaccinate them because they believe in junk science.
Awesome news Im so happy for you… Will keep you in my thoughts that you continue. Great healing.
Im hoping to start in June. 💜